As some of you know, that have been reading my blog for awhile, I am a special education teacher. I am also a consultant and advocate. It has been both an interesting and rewarding choice for my life’s work. A choice that I have never regretted. At times, it has been fascinating and encouraging, and other times frustrating and overwhelming….much like life itself. There are good days and well, the not so good days.
April is autism awareness month. Those of us who are immersed in the world of autism understand that awareness is not just one month out of the year, but an every day call to action. As time goes on, more and more people are being made aware of autism because they are personally being touched by it. They have a loved one with an autism spectrum diagnosis, or a friend’s child, or a classmate or the family that sits behind you in the pew at church. Even though the CDC just announced that so far this year the numbers of autism diagnoses are stable, but up to this point, the number of autism diagnoses has accelerated over the the past 25-30 years. In the late 1980’s autism was known about, but considered fairly rare. My college professors said that I, as a special education teacher, would probably have more students with Down Syndrome or intellectual disabilities or learning disabilities than a child with autism. At that time autism was about 1 in every 10,000 births. By 2000 it was 1:150. Then it was 1:88. Now it is 1:68.
The people in this epic battle with autism, don’t always agree on what causes autism. They might not agree on what are the best therapies. Whether or not a strict diet will help ease the physical pain that often accompanies those with autism. Individuals with high functioning autism have their own issues with which to contend. “Oh, he doesn’t look autistic. I think he will outgrow it. Just give him time.” (As if, there is a specific autism “look” and “giving him time” only delays the intervention that is desperately needed.) Sometimes supports are overlooked because he seems “so normal” accept for his quirkiness. It is a struggle.
The journey with autism is real for a lot of parents. All these children that have been diagnosed over the past quarter century are growing up. What do families do when their child with autism grows up? The supports for adults with autism are sorely lacking. As these children grow up and age out of the school system, there will be a tsunami of autism in the adult world, like nothing we’ve ever seen before. We, as a society, cannot abandon these individuals or their families. Burying our heads in the sand, will do nothing to solve the problem.
This is a call to action. Not just to wear a special color on a special day, but to stand up and advocate every day. To make a difference in the lives of these individuals……
*Prevalence of ASD is estimated at 1:68 births (CDC,2014)
*It is five times more prevalent in boys than in girls.
*There is no known cause or cure.
*No two persons with Autism Spectrum Disorder (ASD) are alike.
*Early intervention (EI) is key! Outcomes improve when diagnosis and intervention occur early.
(stats from: OCALI- Ohio Center for Autism and Low Incidence)
A previous, older post of mine,on autism….notice the difference in the stats from the mid 2000’s to now.